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Carinci F, Štotl I, Cunningham SG, Poljicanin T, Pristas I, Traynor V, Olympios G, Scoutellas V, Azzopardi J, Doggen K, Sandor J, Adany R, Løvaas KF, Jarosz-Chobot P, Polanska J, Pruna S, de Lusignan S, Monesi M, Di Bartolo P, Scheidt-Nave C, C. Heidemann, Zucker I, Maurina A, Lepiksone J, Rossing P, Arffman M, Keskimäki I, Gudbjornsdottir S, Di Iorio CT, Dupont E, De Sabata S, Klazinga N and Massi Benedetti M, Making use of comparable health data to improve quality of care and outcomes in diabetes: the EUBIROD review of diabetes registries and data sources in Europe. Front Clin Diabetes Healthc, 11 Oct 2021.
Di Iorio CT, Carinci F, Oderkirk J, Smith D, Siano M, de Marco DA, de Lusignan S, Hamalainen P, Massi Benedetti M, Assessing data protection and governance in health information systems: a novel methodology of Privacy and Ethics Impact and Performance Assessment (PEIPA), J Med Ethics, 2020 Mar 27.
Cunningham SG, Carinci F, Brillante M, Leese GP, McAlpine RR, Azzopardi J, Beck P, Bratina N, Boucquet V, Doggen K, Jarosz-Chobot PK, Jecht M, Lindblad U, Moulton T, Metelko Ž, Nagy A, Olympios G, Pruna S, Skeie S, Storms F, Di Iorio CT and Massi Benedetti M, Defining a European diabetes data dictionary for clinical audit and healthcare delivery: core standards of the EUBIROD project, Methods of Information in Medicine, 2015 Dec 15;55(2).
Di Iorio CT, Carinci, F, Massi Benedetti M, The Diabetes Challenge: from Human and Social Rights to the Empowerment of People with Diabetes,International Textbook of Diabetes Mellitus, 4th edition, p.1105-1112, 2015, Wiley, New York.
Carinci F, Di Iorio CT, Massi Benedetti M, Standardized information exchange in diabetes: integrated registries for governance, research and clinical practice, Technological Advancements in the Treatment of Type 1 Diabetes, (Frontiers in Diabetes, vol 24), p.236-249, Basel, Karger, 2015.
Di Iorio CT, Carinci F, Oderkirk J, Health Research and Systems’ Governance are at risk: should the right to data protection override health? , J Med Ethics. 2014 Jul;40(7):488-92.
C.T.Di Iorio, F.Carinci, M.Brillante, J.Azzopardi, P.Beck, N.Bratina, S.G.Cunningham, C.De Beaufort, N.Debacker, P.Jarosz-Chobot, M.Jecht, U.Lindblad, T.Moulton, Ž.Metelko, A.Nagy, G.Olympios, S.Pruna, M.Røder, S.Skeie, F.Storms, and M.Massi Benedetti, Cross-border flow of health information: is “privacy by design” enough? Privacy performance assessment in EUBIROD, European Journal of Public Health, 2013 Apr;23(2):247-53.
Pruna S, Purtill C, Massi Benedetti M, Carinci F, Di Iorio CT, Beck P, Cunningham S, Skeie S, Azzopardi J, Traynor V and Ionescu Tirgoviste C, Screening for Diabetes Hypertension in newly diagnosed Type 2 Diabetes using a new technology that carries out in minutes aggregated data analysis, Proc. Rom. Acad., Series B, 2013, 15(2), p. 87–97.
The BIRO Monograph
A book summarizing the results achieved by the BIRO Project
Di Iorio CT, Carinci F, Data Protection and Health Care Information Systems: Where is the Balance?,eHealth: Legal, Ethical and Governance Challenges, Springer Verlag, 2012.
C.T.Di Iorio, F. Carinci, V. Baglioni, J. Azzopardi, P. Beck, S. Cunningham, A. Evripidou, G. Leese, K. F. Loevaas, G. Olympios, M. Orsini Federici, P. Palladino, S. Pruna, S. Skeie, P. Taverner, V. Traynor, M. Massi Benedetti Privacy Impact Assessment in the design of transational public health information system: the BIRO project, Journal of Medical Ethics, 2009, volume 35, issue 12, pagg. 753-761
F. Carinci, J. Azzopardi, V. Baglioni, P. Beck, S. Cunningham, S.Skeie,
G. Olympios, S. Pruna, V. Traynor, M. Massi Benedetti, BIRO Consortium.
Abstract Book of the IDF World Diabetes Congress, O-0402, pag.139, Montreal, Canada, 18-22 October 2009
Monitoring diabetes outcomes across Europe, and beyond:
the EU DG SANCO funded EUBIROD project
F. Carinci, M. Massi Benedetti, EUBIROD Consortium.
Abstract Book of the IDF World Diabetes Congress, D-0721, pag.244, Montreal, Canada, 18-22 October 2009
F. Carinci, L. Rossi, M. Massi Benedetti, BIRO Consortium.
Abstract Book of the IDF World Diabetes Congress, P-1604, pag.543, Montreal, Canada, 18-22 October 2009
C. Di Iorio, F. Carinci, J. Azzopardi, P. Beck, S. Cunningham, S. Skeie,
G. Olympios, S. Pruna, M. Massi Benedetti, BIRO Consortium.
Abstract Book of the IDF World Diabetes Congress, P-1609, pag.545, Montreal, Canada, 18-22 October 2009
Final Report of the BIRO Project
The BIRO Consortium (Fabrizio Carinci, Concetta Tania Di Iorio, Luca Rossi). BIRO Monograph
The BIRO Privacy Impact Assessment
Concetta Tania Di Iorio. BIRO Technical Report
The Privacy Impact assessment Report compiles the results of all previous phases of the BIRO project (Preliminary Analysis, Data Flow Analysis, Privacy analysis) in a structured way
Fabrizio Carinci, Luca Rossi. BIRO Technical Report
A set of powerful statistical tools to transform data gathered in different regions into usable information and customizable reports
The BIRO Privacy Impact Assessment Step 3
Concetta Tania Di Iorio. BIRO Technical Report
The Analysis of privacy and confidentiality issues of the BIRO Architecture and data flow
The Status of Health in the European Union: towards a healthier Europe
EUGLOREH project collaborators (Fabrizio Carinci). EUGLOREH Monograph
The BIRO Privacy Impact Assessment Step 2
Concetta Tania Di Iorio. BIRO Technical Report
Materials, methods and results of a Delphi Consensus Panel that has selected the best architecture to connect diabetes registers according to privacy protection, information content and technical complexity
Fabrizio Carinci, Lorenzo Roti, Paolo Francesconi, Rosa Gini, Fabrizio Tediosi, Tania Di Iorio, Simone Bartolacci, Eva Buiatti. BMC Health Services Research 2007, 7:95
The BIRO Privacy Impact Assessment Preliminary Report
Concetta Tania Di Iorio. BIRO Technical Report
An overview of privacy requirements and relevant legislation for connecting diabetes registers, followed by a general analysis of the proposed data flow and the definition of alternative candidate architectures
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